At the Democratic Party Conference last summer, Ms. Urquiza denounced Mr. Trump very publicly. But her group is impartial, and with Mr. Biden now six months into his tenure and directly responsible for the response, she and other activists are keeping their eyes on him. She wrote to the President asking him to meet with the board of her group; the White House offered other officials instead.
“For the record, I feel ignored,” she said. “We all do that.”
Many survivors and family members consider the president too eager to declare “virus independence”, as he did on July 4th, and not paying enough attention to the plight of “long distance drivers” in urgent need of financial and medical help.
Ms. Bishof, the former Florida firefighter, said members of her long-haul group cheered loudly when Senator Tim Kaine, a Democrat from Virginia, described himself as a Covid long-haul driver during a Senate health committee hearing in March. “We said, ‘Contact him now!’” She exclaimed.
Ms. Bischoff was also instrumental in founding the Long Covid Alliance, A coalition of health- and coronavirus-related groups who achieved a preliminary victory in April when Representatives Donald S. Beyer Jr., Democrat from Virginia and Jack Bergman, Republican from Michigan, Introduced bipartisan legislation Authorization of $ 100 million for research and education related to long-range Covid.
Others had a harder time getting a buy-in from both sides.
After her father died of Covid-19, Tara Krebbs, a former Phoenix Republican who left the party ahead of Mr Trump’s election, reached out to Ms. Urquiza on Twitter. She said she was frustrated and angry and felt alone. “At first there was a lot of silent grief,” she said, “because Covid is such a political issue.”